- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Promoting orphan drug development
- Orphan drug designation
- Improve the safety of your medicines
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- Latest orphan designations and/or marketing authorisations
- EURORDIS Round Table of Companies (ERTC)
- Living with a Rare Disease
- Services to Patients
- Training Resources
- News & Events
Adapted Housing Services: the chance for patients to develop autonomy while living within the comfort of their own home
Read about living with a rare disease and the services available
Read about living with a rare disease and the services available.
Duchenne Symposium Friday 14 June, Hamburg
Check out the latest news and events from our members.
Advancing towards better diagnosis, care and services.
Read more about EUROPLAN 2012-2015
EURORDIS Statement on Data Protection proposals
Data Protection proposals would obstruct rare disease research.
6th International Conference on Children's Bone Health. 22-25 June, Rotterdam, Netherlands
Check out the latest international rare disease events
RareConnect
A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.
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New resource for RareConnect moderators and patient groups using social media |
List of Rare Disease Communities:
To find out more about how you can join RareConnect, contact us.
Patients and services
Featured Event
Members' Corner
National Plans
Actions
International Events
EURORDIS TV
Watch EURORDIS TV's video of the week!
Charlie Bear
This documentary tells the story of Charlie Lewis, a young boy with Smith-Magenis syndrome - a rare developmental disorder
Social Networks
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