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- Rare Disease Policy
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- What is an orphan drug?
- Promoting orphan drug development
- Orphan drug designation
- Improve the safety of your medicines
- Role of EURORDIS
- Patient advocates involvement
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- Latest orphan designations and/or marketing authorisations
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- Living with a Rare Disease
- Services to Patients
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- News & Events
90 participants at EMM 2013 Dubrovnik workshops on Specialised Social Services! Learn more about these services
Read about living with a rare disease and the services available
Read about living with a rare disease and the services available.
Save the date! 7th ECRD will be held in Berlin from 8-10 May 2014
Find out our latest announcements
Summer class on rare diseases, Donostia University, Spain, 25-26 June
Check out the latest news and events from our members.
Advancing towards better diagnosis, care and services.
Read more about EUROPLAN 2012-2015
EURORDIS Statement on Data Protection proposals
Data Protection proposals would obstruct rare disease research.
5e symposium sur le syndrome de Birt-Hogg Dubé - 2e symposium sur la léiomyomatose familiale, à Paris, les 28 et 29 juin 2013
Check out the latest international rare disease events
RareConnect
A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.
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List of Rare Disease Communities:
To find out more about how you can join RareConnect, contact us.
Patients and services
Featured Event
Members' Corner
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International Events
EURORDIS TV
Watch EURORDIS TV's video of the week!
Living with MSA: memories for my daughter
Multiple System Atrophy (MSA) will leave Sam unable to move and speak. She is assembling a box of memories, hopes and dreams for her 16-year-old daughter Rhanna to treasure
Social Networks
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