In brief

The European Organisation for Rare Diseases (EURORDIS) is the voice of 30 million people affected by rare diseases throughout Europe.

EURORDIS is a non-governmental patient-driven alliance of organisations and individuals active in the field of rare diseases in Europe. 

EURORDIS represents over 600 rare disease patient organisations in more than 50 countries, covering more than 4000 rare diseases. 

EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks. 

EURORDIS is supported by its members and by the AFM - Téléthon, the European Commission, corporate foundations and the health industry. EURORDIS was founded in 1997.

eurordis brochure
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Page created: 19/08/2009
Page last updated: 03/06/2014