Recipients

See the list of EURORDIS Awards recipients

 

See live footage from the 2016 EURORDIS Awards Ceremony

 

Lifetime Achievement Award

  • 2016    Renza Barbon Galuppi
  • 2015     Abbey Meyers
  • 2014     Marlene Haffner, MD, MPH
  • 2013     Eva Luise Köhler, Former First Lady of Germany

European Rare Disease Leadership Award

  • 2016     Antoni Montserrat Moliner, Jarek Waligóra and Michael Hübel
  • 2015     Professor Josep Torrent-Farnell
  • 2014     Paola Testori Coggi - Professor Luca Pani - Professor Guido Rasi
  • 2013     Ruxandra Draghia-Akli, MD, PhD
  • 2012     Kerstin Westermark, MD, PhD

Policy Maker Award

  • 2016     MEP Cristian-Silviu Busoi
  • 2015     MEP Glenis Willmott
  • 2014     MEP Antonyia Parvanova
  • 2013     MEP Françoise Grossetête
  • 2012     Commissioner Androulla Vassiliou, JD

EURORDIS Volunteer Award  

  • 2016     Tsveta Schyns-Liharska
  • 2015     Rosa Sanchez de Vega
  • 2014     Lise Murphy
  • 2013     Lesley Greene. See the video
  • 2012     Michele Lipucci Di Paola, PhD

Scientific Award

  • 2016     Prof. Dr. Peter N. Robinson
  • 2015     Professor Kate Bushby
  • 2014     Professor Hans-Hilger Ropers
  • 2013     Ségolène Aymé, MD. See the video
  • 2012     San Raffaele Telethon Institute for Gene Therapy, Italy and Hôpital Necker – Enfants Malades, France

Patient Organisation Award

  • 2016     UNIQUE - The Rare Chromosome Disorder Support Group, UK
  • 2015     Children with SMA (Ukraine)
  • 2014     Allianz Chronischer Seltener Erkrankungen (ACHSE)
  • 2013     Alström Syndrome UK. See the video
  • 2012     French Muscular Dystrophy Association (AFM – Téléthon)

Company Awards

  • 2016     Actelion Pharmaceuticals Ltd.
  • 2015     Pfizer
  • 2014     Orphan Europe, Recordati group - Swedish Orphan Biovitrium (Sobi)
  • 2013     Celgene Corporation – Prosensa – Genzyme, a Sanofi Company
  • 2012     CSL Behring – Sigma-Tau Pharmaceuticals - Shire

Media Award

  • 2016     France Télévisions - AFM-Téléthon
  • 2015     Peter O'Donnell, European Voice
  • 2014     Rick Guidotti
  • 2013     Andrew Jack, Financial Times
  • 2012     BBC

EURORDIS Awards 2016 Photo Gallery

Page created: 18/07/2013
Page last updated: 30/09/2016
 
 
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