EURORDIS Summer School Alumni

The Summer School began in 2008 with the first session that brought together 34 patients’ representatives from 16 different European countries and representing more than 21 different rare diseases.

To date, more than 400 participants from over 40 countries and representing more than 75 different diseases have been trained. These alumni have gone on to become involved in various advocacy activities at both the national and European level.

Use the Member Search in our EURORDIS Member Section to find more information about patient organisations in your country.

Download our list of Alumni

 

 

EURORDIS Summer School 2017

 

Page created: 14/11/2011
Page last updated: 28/06/2017
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases