Find information or help for a rare disease

Adrien & his brother

INFORMATION SERVICES
 

EUROPE

ORPHANET - www.orpha.net

USA

NORD - www.rarediseases.org


GET HELP

 

FRANCE

Maladies Rares Info Services - www.maladiesraresinfo.org

ITALY

ISS (Istituto Superiore di Sanità) - www.iss.it
UNIAMO - www.uniamo.org

SPAIN

FEDER SIO (Servicio de Informacia y Orientacion) - www.enfermedades-raras.org

telephone helpline operator

LATIN AMERICA

GEISER (Grupo de Enlace, Investigación y Soporte Enfermedades Raras) - www.fundaciongeiser.org

USA

Genetic and Rare Diseases Information Center (GARD) - rarediseases.info.nih.gov

UK

Contact a Family (CAF) - www.cafamily.org.uk

CLIMB (Metabolic Diseases, UK) - www.climb.org.uk


NATIONAL ALLIANCES for rare disease patient groups

 

A selection of National Alliances for rare disease patient groups in Europe and worldwide - www.eurordis.org

baby & doctor | bébé et docteur | bebé y doctor | bambino e medico | bebê e doutor | Baby und Doktor


ASK YOUR DOCTOR

Eurordis cannot respond to questions concerning the medical aspects of a rare disease. Eurordis does not employ qualified medical personnel or information specialists to give medical advice, diagnose illness, or offer referrals.

We strongly recommend that you seek the advice of your health care provider with questions regarding medical care.

If you need help finding a patient group for your disease, email us at eurordis@eurordis.org
 

Author: Eurordis
Photo credits: Adrien & his brother © AFM; helpline operator : ©iStockphoto.com/ Rich Legg ; baby & doctor © Jim Gathany / Centers for disease control and prevention ;