EURORDIS Membership Meeting 2016 Edinburgh
The EURORDIS Membership Meeting (EMM) 2016 will take place on 26 May 2016 at the EICC, Edinburgh, Scotland, in conjunction with the European Conference on Rare Diseases & Orphan Products.
The first part of the EMM, the EURORDIS General Assembly (GA), will take place from 09:00 to 13:00. The GA is open to EURORDIS members only. This year an extraordinary General Assembly will precede the ordinary General Assembly to present and discuss an update to the EURORDIS by-laws.
Five positions to the EURORDIS Board of Directors will be up for election at the GA. If you represent an organisation that is a full member of EURORDIS, you are eligible to apply for a seat on the Board. If interested, please email email@example.com before 15 April, 2016.
The rest of the EMM is open to the public. From 14:00 - 17.30, the remainder of the EMM will take place, including four capacity-building workshops designed to empower patient advocates and to encourage learning and knowledge exchange.
The workshop themes are:
European Reference Networks (ERN) and European Patient Advocacy Groups (ePAGs) by ERN Groupings
Social innovation: patient experience and expectations
Good clinical practice in the context of ERNs
At a glance schedule – EURORDIS Membership Meeting, Thursday 26 May 2016
08.00-09.00 Registration open for EURORDIS General Assembly (EURORDIS members only)
09.00-10.00 EURORDIS Extraordinary General Assembly (EURORDIS members only)
10:00-13:00 EURORDIS Ordinary General Assembly (EURORDIS members only)
14.00-17.30 Capacity-building workshops
18.00-19.00 Welcome reception for patient representatives
How to register
To register to the EMM, please go to www.rare-diseases.eu/registration and tick the boxes at the top of the form for the GA and EMM when registering for the European Conference on Rare Diseases & Orphan Products.
Preparatory documents for the EURORDIS General Assembly and Extraordinary Assembly 2016