EURORDIS Membership Meeting

 

 

Save the date: EURORDIS Membership Meeting 2017 Budapest

The next EURORDIS Membership Meeting (EMM 2017) will take place in Budapest, Hungary at the Danubius Hotel Helia from 19 - 20 May 2017.

The working language of the meeting will be English.

 

Read the final programme here.

 

Registration

Registration is now closed for this event. 

Soapbox Session

6 patient representatives will have the opportunity to present Innovative strategies, approaches, services or projects that could potentially be useful to other patient groups in a soapbox session on Saturday 20 May.

Please note that the soapbox session is complete. Should you have any questions on this subject please email anja.helm@eurordis.org

Hotels 

We encourage you to book your hotel rooms at your earliest convenience. 

Danubius Hotel Helia
Kárpát utca 62-64., 1133 Budapest, Hungary.

Phone: +36-1-889-5800,

For information concerning accessible rooms, please contact emilie.zingg@eurordis.org

Pratical Information

For directions from the airport to the hotel including estimated costs and phone number for a taxi service adapted for wheelchair users and for more hotel options, please download our Practical Information document.

Satellite Meetings

This 2-day event, is preceded by the following satellite meetings on May 18:

EURORDIS Board of Directors elections

Friday 19 May,  will begin with the EURORDIS Annual General Assembly, during which five directors will be elected to the Board of Directors.

If you represent a member organisation of EURORDIS (full members only) and would like to apply for a seat on the board, please contact anja.helm@eurordis.org before 26th April 2017.

 

We look forward to seeing you in Budapest!

Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.

Membership Meeting 2014

The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities. The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, sharing best practices and increasing knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.

 

 

More information 

Previous Membership Meetings:

 

Page created: 23/07/2013
Page last updated: 11/05/2017
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases