EURORDIS Membership Meeting

Save the date: EURORDIS Membership Meeting 2017 Budapest

The next EURORDIS Membership Meeting (EMM 2017) will take place in Budapest, Hungary at the Danubius Hotel Helia from 19 - 20 May 2017.

The working language of the meeting will be English, with simultaneous translation of the Plenary Session on Friday into Hungarian.

Registration

Registration for this event opens January 2017. Please return to this page then for more information on how to register.

EURORDIS is once again offering patient fellowships for up to 40 patient advocates. The deadline for applications is 28 February 2017. More information is available here. Download the application form here. See the evaluation criteria to be a patient fellowship here.

Soapbox session:
6 patient representatives will have the opportunity to present Innovative strategies, approaches, services or projects that could potentially be useful to other patient groups in a soapbox session on Saturday 20 May. If you are interested in participating, please email anja.helm@eurordis.org
Each person will have 5 minutes to present (no slides will be allowed).

 

Hotels

We encourage you to book your hotel rooms as soon as possible.

Danubius Hotel Helia
Kárpát utca 62-64., 1133 Budapest, Hungary, Phone: +36-1-889-5800,

Hotel room rates:
Single room: 98,-EUR/ room /night
Double room: 98,-EUR/ room /night
Danube view: 10,-EUR/ room /night
The above prices are inclusive of buffet breakfast, WiFi internet access throughout the hotel, unlimited use of the Danubius Premier Fitness Club

A direct link will soon be available for you to book your room.

The hotel has wheelchair-adapted rooms. Please contact EURORDIS to book one of these rooms.

For directions from the airport to the hotel including estimated costs and phone number for a taxi service adapted for wheelchair users and for more hotel options, please download our Practical Information document.

Satelite Meetings

This 2-day event, is preceded by the following satellite meetings on May 18:
- ePAG representatives meeting & leadership workshop (closed meeting, email lenja.wiehe@eurordis.org for more details)
- Council of National Alliances meeting (closed meeting, email anja.helm@eurordis.org for more details)

EURORDIS Board of Directors elections

Friday 19 May,  will begin with the EURORDIS Annual General Assembly, during which four directors will be elected to the Board of Directors. If you represent a member organisation of EURORDIS (full members only) and would like to apply for a seat on the board, please contact anja.helm@eurordis.org before 26th April 2017.

We look forward to seeing you in Budapest!

 

 

Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.

Membership Meeting 2014

The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities. The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, sharing best practices and increasing knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.

 

 

More information 

Previous Membership Meetings:

 

Page created: 23/07/2013
Page last updated: 02/12/2016
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases