Rare Diseases International

Rare Diseases International

Rare Diseases International (RDI) is the global alliance of people living with a rare disease of all nationalities across all rare diseases.

RDI brings together national and regional rare disease patient organisations from around the world as well as international rare disease-specific federations to create the global alliance of rare disease patients and families.

RDI is an international network currently embedded in EURORDIS, which supports its development. RDI is currently governed by a Pre-formation Group until its members elect a Council in 2016. In coming years, the Council and members of RDI will decide if and when to register RDI as a separate organisation with its own legal identity. The initial focus is on taking action and gaining experience of working together.

For more information or to become a member visit www.rarediseasesinternational.org 

Visit the Rare Diseases International discussion group on RareConnect. 


Page created: 15/10/2014
Page last updated: 03/11/2016
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases