Rare Diseases International
Rare Diseases International (RDI) is the global alliance of people living with a rare disease of all nationalities across all rare diseases.
RDI brings together national and regional rare disease patient organisations from around the world as well as international rare disease-specific federations to create the global alliance of rare disease patients and families.
RDI is an international network currently embedded in EURORDIS, which supports its development. RDI is currently governed by a Pre-formation Group until its members elect a Council in 2016. In coming years, the Council and members of RDI will decide if and when to register RDI as a separate organisation with its own legal identity. The initial focus is on taking action and gaining experience of working together.
For more information or to become a member visit www.rarediseasesinternational.org
Visit the Rare Diseases International discussion group on RareConnect.