Birthe Byskov Holm
Sjældne Diagnoser, Denmark
Rare Disorders Denmark
Tel.: +45 3314 0010
Fax: +45 3314 5509
Birthe Byskov Holm has a long history of active participation in patient organisations. She became involved in the field of rare diseases because her now grown-up son was born with the rare disorder Osteogenesis Imperfecta.
Birthe has been a member of the Danish Osteogenesis Imperfecta Association since 1983 where she has acted as President and Vice-President and she is also a co-founder and currently President of the Danish rare disease alliance (Rare Disorders Denmark).
In addition, Birthe is currently a EURORDIS nominated patient representative at the Committee of Orphan Medicinal Products (COMP) of the European Medicines Agency (EMA) where she also acts as vice-chair.
A lawyer by training, Birthe retains her own practice.