ERTC Workshops

The EURORDIS Round Table of Companies (ERTC) holds regular workshops, bringing together stakeholders to discuss topics relevant to the development of orphan drugs and other treatments for rare diseases.

February 2013 18th Workshop, Brussels: "Corporate Responsibility in Improving Access to Orphan Medicinal Products"
September 2012 17th Workshop, Barcelona: "The Value of Orphan Drugs: Efficient for the Patients, Useful to Society?"
March 2012 16th Workshop, Brussels: "The Value of Partnering in Rare Disease Therapies"
November 2011 15th Workshop, Paris: “Compassionate Access to Rare Disease Therapies”
May 2011 14th Workshop, Barcelona: “Mechanisms for the Implementation of the Clinical Added-Value (Relative Effectiveness) of Orphan Drugs, CAVOD”
December 2010 13th Workshop, Paris: "Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"
June 2010 12th Workshop, Barcelona: “Retooling the EU Orphan Drug Regulation and US Orphan Drug Act for Better and Faster Development of Rare Disease Therapies”
December 2009 11th Workshop, Paris: “Improving Access to Orphan Drugs for all Patients affected by Rare Diseases in Europe: EU Assessment of Clinical Added-Value of Orphan Drugs (CAVOD)”
June 2009 10th Workshop, Barcelona: “EURORDIS Strategy 2010-2015 and Partnership with the ERTC Members”
December 2008 9th Workshop, Paris: "Significant Benefit of Orphan Drugs:Impact on Clinical Development and Assessment"
June 2008 8th Workshop, Barcelona: “Impact of the EU Paediatric Regulation on Orphan Drug Development”
December 2007 7th Workshop, Paris: "Proof of Concept and Level of Evidence in Orphan Drug Development"
June 2007 6th Workshop, Barcelona: “Do Rare Disease Patients Have Real Access to Orphan Drugs in Europe?”
November 2006 5th Workshop, Paris: "Rare Disease Patient Registries: an Essential Tool in the Development of Therapies?"
June 2006 4th Workshop, Barcelona: “Common Drugs for Common Needs:the US vs EU Approach to OMP Development”
November 2005 3rd Workshop, Barcelona: “Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”
July 2005 2nd Workshop, PAris: "New Methodologies for Clinical Trials in Small Populations"
December 2004 1st Workshop, Barcelona: “Compassionate Access Programmes for Orphan Drugs in Europe: from Heterogeneity to Harmonised Practices?”