Raquel Castro

  • Social Policy Senior Manager

Raquel Castro

Raquel Castro joined EURORDIS in 2012.

Based in Paris, she is part of the Operations Team and is responsible for managing EURORDIS’ activities related to the integration of rare diseases into social services and policies.

Raquel is currently in charge of INNOVCare project, focused on promoting integrated care and on improving social services for people living with a rare disease. She is also involved in the RD-Action, the new Joint Action for rare diseases promoted by the European Union and Member States.

Previously, she was assigned to the European Union Committee of Experts on Rare Diseases (EUCERD) Joint Action, managing the work package on Provision of Specialised Social Services and Integration of Rare Diseases into Social Policies and Services 

Prior to joining EURORDIS, Raquel coordinated the Portuguese Help Line for rare diseases (Linha Rara), obtaining a broad experience in dealing with rare disease patients’ and families’ needs.

With over ten years of experience working in not-for-profit organisations, Raquel has previously been involved in humanitarian and development projects in Europe and in Asia.

Raquel holds a Bachelor of Arts in Communication as well as a post graduate degree in Project Management at the Lisbon School of Economics and Management.

A Portuguese national, Raquel is also fluent in English, French and Spanish.

Telephone: +33 1 56 53 52 67
Email: raquel.castro@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades raras, Rare Diseases International es una iniciativa de EURORDISRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas, RareConnect es una iniciativa de EURORDIS RareConnect Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases