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Publications

Informations services for rare diseases

Mayo 11 (Todo el día) EURORDIS Contribution to the European Commission Public Consultation on the Revision of the “Clinical Trial Directive”

Informations services for rare diseases

Diciembre 09 Concept paper: Improving Access to Orphan Drugs (11th ERTC Workshop)

Informations services for rare diseases

Noviembre 09 (Todo el día) EURORDIS Policy on Financial Support by Commercial Companies

Informations services for rare diseases

Mayo 09 POLKA: Patients’ Consensus on Preferred Policy Scenarii for Rare Diseases

Informations services for rare diseases

Febrero 09 La Voix de 12 000 Malades

Informations services for rare diseases

Febrero 09 The Voice of 12,000 Patients

Informations services for rare diseases

Noviembre 08 Centres of Expertise & European Reference Networks for Rare Diseases

Informations services for rare diseases

Noviembre 08 Les centres d’expertise et les réseaux de référence européens pour les maladies rares

Informations services for rare diseases

Junio 07 Eurordis Charter for Clinical Trials in Rare Diseases

Informations services for rare diseases

Diciembre 05 Rare diseases: understanding this public health priority

Informations services for rare diseases

Diciembre 05 Maladies rares : comprendre cette priorité de santé publique

Informations services for rare diseases

Marzo 04 Rare Disease Info: Guidelines & Manual

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Rare disease blogs

A disappointing consultation on the UK plan for rare diseases Wed, 07 Mar 2012 - I’ve just been reading through the consultation document for the UK plan on rare...
Why Rare Disease Day is So Important Mon, 27 Feb 2012 - When EURORDIS first created Rare Disease Day in 2008, my first reaction was a bit...
Rare Disease Day: Building momentum towards international collaboration. Mon, 27 Feb 2012 - As we celebrate the International Rare Disease Day 2012 we are turning rare diseases into...
NORD Supports TREAT Act Introduced by Senator Hagan Thu, 16 Feb 2012 - U.S. Senator Kay Hagan (NC) has introduced proposed legislation that NORD believes could...