Rare Diseases awareness dates

Does your association have an awareness date to communicate? Please contact us.

February 2017

International Angelmans Day

15 February, more information

March 2017

Lymphedema Awareness Day

6 March, more information 

International Childhood Cancer Awareness Day (ICCD 2017)

7 March, more information

April 2017

World Pulmonary Hypertension Day (WPHD)

5 May, worldphday.org

World Health Day

7 April, more information from the International Federation for Spina Bifida and Hydrocephalus

World Haemophilia Day

19 April, more information 

May 2017

Ichthyosis Awareness Month

May 2017, more information

Syringomyelia Awareness Month

May 2017, more information 

Von Hippel-Lindau (VHL) Awareness Month

May 2017, vhl.org

Wishbone Day: international community awareness effort for Osteogenesis Imperfecta

6 May, www.wishboneday.com

Lymphangiomatosis and Gorham's Disease Worldwide Awareness Day

26 May

www.lgdalliance-europe.org

www.alfiemilne.org.uk

www.lgdalliance.org

Type II Collagenopathies Awareness Day

27 May, more information 

 

June 2017

Heart Rhythm Week

5-11 June, more information

International Albinism Awareness Day

13 June, more information 

Journée Mondiale de la Drépanocytose par l'OMS

19 June, more information

International Aniridia Day

21 June, more information

Myeloma Awareness Week

21-28 June, more information

Dravet Syndrome Awareness Day

23 June, more information

World Scleroderma Day

29 June, more information

July 2017

Pseudohypoparathyroidism Awareness Day

5 July, more information

August 2017

World PVNH disorder Awareness day

7 August, more information

September 2017

World Duchenne Awareness Day

7 September, more information

World Cystic Fibrosis Day

8 September, more information

World Retina Day

9 September, more information

World Lymphoma Awareness Day

15 September, more information

Usher Awareness Day - Own the Equinox

16 September, more information

Global Aortic Dissection Awareness Day

19 September, more information

International CML Awareness Day

22 September, more information

International Ataxia Awareness Day

25 September, more information

October 2017

International Gaucher Day

1 October, more information

International Trigeminal Neuralgia Awareness Day

7 October, more information

World Spina Bifida Day

25 October, more information

EB Awareness Week

25-31 October, more information

November 2017

NET Cancer Day

10 November, more information

AF Aware Week

20-26 November, more information

Cystic Fibrosis Awareness week

21 November, more information

December 2017

Patient Solidarity Day

2 December, more information

International Day of Persons with Disabilities

3 December, more information

September 2016

SMA (Spinal Muscular Atrophy) Awareness Week

Date TBC, more information

IPF World Week

17-25 September 2016, more information

Erdheim-Chester Disease Awareness Week

12-17 September 2016, more information

July 2016

Pseudohypoparathyroidism Awareness Day

5 July 2016, more information

June 2016

World Sickle Cell Week

12-19 June 2016, more information

Chromosome Disorder Awareness Week

12-18 June 2016, more information

Page created: 08/11/2013
Page last updated: 11/07/2017
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rare, Rare Diseases International est une initiative d'EURORDISRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect est une initiative d'EURORDIS RareConnect Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases