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Learn more about rare diseases and orphan drugs through opinions given by key players in these sectors. Join in and leave your comment too!

The ECRD in Krakow built momentum to turn EU policy framework into effective services for rare disease patients in Europe. Read the full report...

L'opinione della EMA contribuisce a sperare per una cura della sindrome di Prader-Willi Nel gennaio 2012, il Comitato per i Prodotti Medicinali...

Integrare i finanziamenti nazionali per la ricerca sulle malattie rare con gli obiettivi e le politiche internazionali comuni.

Il Belgio esamina 42 raccomandazioni per elaborare il suo piano nazionale per le malattie rare incentrato sulla cura del paziente.

Scopri quali sono le ultime notizie dalla comunità delle malattie rare!

A disappointing consultation on the UK plan for rare diseases Wed, 07 Mar 2012 - I’ve just been reading through the consultation document for the UK plan on rare...
Why Rare Disease Day is So Important Mon, 27 Feb 2012 - When EURORDIS first created Rare Disease Day in 2008, my first reaction was a bit...
Rare Disease Day: Building momentum towards international collaboration. Mon, 27 Feb 2012 - As we celebrate the International Rare Disease Day 2012 we are turning rare diseases into...
NORD Supports TREAT Act Introduced by Senator Hagan Thu, 16 Feb 2012 - U.S. Senator Kay Hagan (NC) has introduced proposed legislation that NORD believes could...