www.eurordis.org | The Voice of Rare Disease Patients in Europe

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Fact Sheets

EURORDIS Fact Sheets

Informations services for rare diseases

Maggio 10 Respite Care Services for Rare Diseases

Informations services for rare diseases

Dicembre 09 National help lines for rare diseases

Informations services for rare diseases

Dicembre 09 Centres of Expertise

Informations services for rare diseases

Dicembre 09 European Reference Networks of Centres of Expertise

Informations services for rare diseases

Dicembre 09 The European Network of Rare Disease Help Lines

Informations services for rare diseases

Giugno 06 What is a rare disease?

Informations services for rare diseases

Giugno 06 Rare disease patient groups in the European Union

Informations services for rare diseases

Giugno 06 What is an orphan drug?

Informations services for rare diseases

Giugno 06 The Eurordis Round Table of Companies (ERTC)

Informations services for rare diseases

Giugno 06 Orphan drugs: the role played by Eurordis

Informations services for rare diseases

Giugno 06 Survey of the delay in diagnosis for 8 rare diseases in Europe (‘EurordisCare2’)

Informations services for rare diseases

Giugno 06 Paediatric drugs and rare diseases

Newsletter

La nostra newsletter è publicata mensilmente in 7 lingue e contiene articoli, notizie ed eventi.

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Rare disease blogs

Live from Tbilisi, Georgia Wed, 02 Nov 2011 - Live from Tbilisi. I am at the 2nd South Caucasia Conference on Rare Diseases and Orphan...
Report from Washington. The 1st US Conference on Rare Diseases and Orphan Products. Wed, 02 Nov 2011 - The 1st US Conference on Rare Diseases and Orphan Products, co-organised by NORD...
Rare diseases are an example of the need for more Europe today Wed, 05 Oct 2011 - After the impact on Europe of the US financial crisis two years ago, the EU is now shaken...
Do we need to rebrand rare diseases? Wed, 05 Oct 2011 - I came home late from London last night. We’d just had a brainstorm with a group of...