• Chi siamo
  • Cosa facciamo
  • Membri
  • Informazione & Multi-media
  • Contact Us
  • Donate

Eurordis, Rare Diseases Europe The voice of rare disease patients in Europe

  • Le malattie rare
  • Vivere Con Una Malattia Rara
  • Farmaci orfani
  • La Politica Europea
  • Servizi ai malati
  • Partecipate
  • Training Resources
  • Notizie e eventi
    Home
  • Lingua :
  • en
  • |
  • fr
  • |
  • de
  • |
  • it
  • |
  • es
  • |
  • pt
  • |
  • ru
 

Fact Sheets

EURORDIS Fact Sheets

Informations services for rare diseases Maggio 10 Respite Care Services for Rare Diseases
Informations services for rare diseases Dicembre 09 National help lines for rare diseases
Informations services for rare diseases Dicembre 09 Centres of Expertise
Informations services for rare diseases Dicembre 09 European Reference Networks of Centres of Expertise
Informations services for rare diseases Dicembre 09 The European Network of Rare Disease Help Lines
Informations services for rare diseases Giugno 06 What is a rare disease?
Informations services for rare diseases Giugno 06 Rare disease patient groups in the European Union
Informations services for rare diseases Giugno 06 What is an orphan drug?
Informations services for rare diseases Giugno 06 The Eurordis Round Table of Companies (ERTC)
Informations services for rare diseases Giugno 06 Orphan drugs: the role played by Eurordis
Informations services for rare diseases Giugno 06 Survey of the delay in diagnosis for 8 rare diseases in Europe (‘EurordisCare2’)
Informations services for rare diseases Giugno 06 Paediatric drugs and rare diseases
 
 


 
 
 

Newsletter

La nostra newsletter è publicata mensilmente in 7 lingue e contiene articoli, notizie ed eventi.

Iscrizione
 
 

Social network

  • Facebook Diventa fan
  • Twitter Segui
  • YouTube Visualizza i nostri video
 
 
 

Rare disease blogs

  • Live from Tbilisi, Georgia Wed, 02 Nov 2011 - Live from Tbilisi. I am at the 2nd South Caucasia Conference on Rare Diseases and Orphan...
  • Report from Washington. The 1st US Conference on Rare Diseases and Orphan Products. Wed, 02 Nov 2011 - The 1st US Conference on Rare Diseases and Orphan Products, co-organised by NORD...
  • Rare diseases are an example of the need for more Europe today Wed, 05 Oct 2011 - After the impact on Europe of the US financial crisis two years ago, the EU is now shaken...
  • Do we need to rebrand rare diseases? Wed, 05 Oct 2011 - I came home late from London last night. We’d just had a brainstorm with a group of...
 

EURORDIS.org - accesso rapido

  • Le malattie rare
  • Vivere Con Una Malattia Rara
  • Farmaci orfani
  • La Politica Europea
  • Servizi ai malati
  • Partecipate
  • Training Resources
  • Notizie e eventi
  • Chi siamo
  • Cosa facciamo
  • Membri
  • Informazione & Multi-media
  • Contact Us
  • Donate
  • Dichiarazione privacy
  • Limitazione di responsabilità e condizioni di utilizzo
  • About this website

Noi aderiamo ai principi HONcode.

This website is certified by Health On the Net Foundation. Click to verify.

Per il supporto finanziario del sito web EURORDIS siamo grati a :

  • logo AFM
  • logo Executive Agency for Health and Consumers
  • logo LEEM
  • logo EU