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RareConnect

A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups. List of Rare Disease Communities:

Rare disease blogs

Developing a cure for Black Bone Disease: are we nearly there? Wed, 03 Apr 2013 - So here we are, at last: the culmination of 10 years of work. We’re launching the first...
On the occasion of the DIA President’s Award for Outstanding Achievement in World Health Tue, 05 Mar 2013 - Full acceptance speech of Yann Le Cam (Chief Executive Officer, EURORDIS) on the occasion...
Rare Disease Day 2013 Improving patients’ access to orphan medicinal products in Europe based on increased EU coordination Mon, 25 Feb 2013 - Paris, 21 February 2013 – A press conference to launch the sixth Rare Disease Day...
National strategy for rare diseases, how do we do now? EUROPLAN National Conference in Sweden Tue, 04 Dec 2012 - National strategy for rare diseases, how do we do now? That was the headline on Monday...

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