Raquel Castro

  • Social Policy Senior Manager

Raquel Castro

Raquel Castro joined EURORDIS in 2012.

Based in Paris, she is part of the Operations Team and is responsible for managing EURORDIS’ activities related to the integration of rare diseases into social services and policies.

Raquel is currently in charge of INNOVCare project, focused on promoting integrated care and on improving social services for people living with a rare disease. She is also involved in the RD-Action, the new Joint Action for rare diseases promoted by the European Union and Member States.

Previously, she was assigned to the European Union Committee of Experts on Rare Diseases (EUCERD) Joint Action, managing the work package on Provision of Specialised Social Services and Integration of Rare Diseases into Social Policies and Services 

Prior to joining EURORDIS, Raquel coordinated the Portuguese Help Line for rare diseases (Linha Rara), obtaining a broad experience in dealing with rare disease patients’ and families’ needs.

With over ten years of experience working in not-for-profit organisations, Raquel has previously been involved in humanitarian and development projects in Europe and in Asia.

Raquel holds a Bachelor of Arts in Communication as well as a post graduate degree in Project Management at the Lisbon School of Economics and Management.

A Portuguese national, Raquel is also fluent in English, French and Spanish.

Telephone: +33 1 56 53 52 67
Email: raquel.castro@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rari, è un'iniziativa di EURORDISRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno, è un'iniziativa di EURORDISRare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases