Lara Chappell

  • Communications Director

Lara Chappell

Lara Chappell joined EURORDIS in December 2011 and was named Communications Director in February 2014.

As head of the Communications team, Lara's responsibilities include Rare Disease Day actions and managing external communication concerning EURORDIS' activities.

Previously, Lara was the spokesperson in France for the US National Basketball Association (NBA), managing press relations and events. She continued to work for the NBA focusing on marketing sponsorships and then managing a grass-roots event in schools throughout Europe.

Before joining EURORDIS, she was a training advisor at Formalangues, part of the international corporate training company, Demos Group.

She holds a Bachelor of Arts in French Culture with a minor in Mathematics from the University of Pennsylvania as well as a Master of Business Administration from HEC (École des hautes études commerciales de Paris) in France.

A dual French-American national, Lara grew up in the US state of New Jersey and has lived in Paris since 1991.

A native English speaker, she is fluent in French.

Lara is married with two sons, the elder of whom has Angelman Syndrome.

Telephone: +33 1 56 53 52 60
Email: lara.chappell@eurordis.org

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases