Robert Pleticha

  • RareConnect Project Manager

Rob Pleticha

Robert Pleticha joined EURORDIS in 2010 as the Online Patient Communities Coordinator later becoming RareConnect Project Manager.

Robert (Rob) is part of the Communication team where he works with patients and patient groups to develop and maintain social networks for specific rare diseases. In addition he actively promotes volunteer opportunities for the Therapeutic Recreation Programmes.

Previously, Rob has worked as a respite care provider, creating volunteer networks and organising capacity building workshops for patient representatives. He first worked with Developmental Services Center in Champaign, Illinois supporting adults with disabilities in a sheltered workshop environment.

Following this, he became a United States Peace Corps volunteer in Zalau, Romania working with Dorica Dan and the Romanian Prader Willi Association, and the Romanian National Alliance for Rare Diseases to create the Pilot Reference Center for Rare Diseases in Romania in partnership with Frambu.

Rob has a Bachelor of Science in Psychology from the University of Illinois, Champaign-Urbana.

He is a native English speaker who also speaks Romanian and French.


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases