EURORDIS Photo Contest 2008

Evelyn

Wed, 07 May 2008 11:42 +0200

Intestinal pseudo-obstruction

Laura, after surgery, recovering

Wed, 07 May 2008 11:38 +0200

Aged 4, Taken in hospital, after surgery, Dysmelia

Lily - finding comfort

Wed, 07 May 2008 11:36 +0200

Obliterative Bronchiolitis

Lily - Bookish

Wed, 07 May 2008 11:32 +0200

Trying to create a distraction for Lily while in hospital. Obliterative Bronchiolitis

Medhi

Wed, 07 May 2008 11:27 +0200

Epidermolysis Bullosa

Winner - Medical Environment - Michelle

Wed, 07 May 2008 11:19 +0200

Michelle and her Father Alexander in the hospital for children, Heilbronn , Epidermolysis Bullasa junktionalis n-H

Rannium

Wed, 07 May 2008 11:06 +0200

Cystic hygroma

Sakura

Wed, 07 May 2008 11:03 +0200

Epidermolysis Bullosa

Dolphin Care

Wed, 07 May 2008 11:00 +0200

Aged 4, Spinal Muscular Atrophy, Dolphin Care, Kharkiv, Ukraine

Adel & friends

Wed, 07 May 2008 10:55 +0200

Adél is on the left with her friend and her brother. Adél loves swinging any time.

Albanoelle (2)

Wed, 07 May 2008 10:22 +0200

Achondroplasia

Winner - Everyday life cateogry - Francis, Camino de Santiago (2)

Wed, 07 May 2008 10:20 +0200

Taken as part of a week long journey to Santiago. Sclerose Laterale Amyotrophique. Aged 57. Nationality: Belgian

Laura, on swing

Wed, 07 May 2008 10:10 +0200

Aged 4. Taken after surgery, recovery period. Dysmelia. Finland

Lily - Botanic Gardens

Wed, 07 May 2008 10:06 +0200

Aged 8 months. Taken during a family outing at Kibble Palace in Glasgow's Botanic Gardens. Obliterative Bronchiolitis

Lily - Snow

Wed, 07 May 2008 10:03 +0200

Aged 8 Monthys. Braving the snow for her first swing with her mother plus oxygen. Obliterative Bronchiolitis. Glasgow, UK

Yerai

Wed, 07 May 2008 09:57 +0200

Girlfriends

Wed, 07 May 2008 09:51 +0200

Yuliya

Wed, 07 May 2008 09:46 +0200

Spinal Muscular Atrophy; Kharkiv; Ukraine

Arturo y Abel

Wed, 07 May 2008 09:40 +0200

Aged 24 and 27, Sindrome de Angelman, Espana

Runner up - Albanoelle

Wed, 07 May 2008 09:36 +0200

Boglarka

Tue, 06 May 2008 18:30 +0200

We took Bogi to a railway museum which she enjoyed extremely. On the photo she imitates the motion of the wheels of an old train. chromosomal disorder; 2q+ Budapest, Hungary, Boglárka Karcza - 4 years old

Joel

Tue, 06 May 2008 18:23 +0200

Joel Billing, aged 12, Birmingham, England. “Thunder cloud mood lifts slowly; savouring sweet Earl Grey, but in unsavoury polystyrene cup”
Other information: Even staying in the same sea resort, with not only a Woolworth’s but also a LEGO shop, with pocket money galore to spend in the same B&B, in the same room, with familiar kitchen and familiar garden..even with Sainsbury’s tins of Tuna in Sunflower Oil in our cases and fresh croissants at brekke..even then each evening Joel would sincerely agonise, lament and sob “How can you???…… force me come on holiday when you know I hate being away from Home”

The Long Term Neurological Genetic Condition – NEUROFIBROMATOSIS Type 1 with (among many manifestations); additional diagnosis; aged 10; of associated condition High Functioning Autism

Laura

Tue, 06 May 2008 18:15 +0200

Laura Nopanen, aged 3, Finland, Dysmelia

Lily

Tue, 06 May 2008 18:08 +0200

Lily Oxbrow, 7 months. Taken in the greenhouse at Glasgow's Botanic Gardens. Childhood Obliterative Bronchiolitis Lung Disease

Winner - Portrait Category - Merel

Tue, 06 May 2008 18:02 +0200

Merel VERWILT. EPIDERMOLYSIS BULLOSA DYSTROPHICA, HALLOPEAU-SIEMENS TYPE

Other information: THIS PHOTO IS PART OF A PHOTO SESSION, MAKING A FAMILY PORTRET TOGETHER WITH MOM & DAD.

Sylvia Van Velthoven with pills

Tue, 06 May 2008 17:56 +0200

Sylvia Van Velthoven. Country: Belgium. Disease: Cystic Fibrosis

Adel

Tue, 22 Apr 2008 16:15 +0200

Francis, Camino de Santiago (1)

Sun, 23 Sep 2007 16:24 +0200

Taken as part of a week long journey to Santiago. Sclerose Laterale Amyotrophique

Bernhard

Sat, 09 Jun 2007 10:40 +0200

Aged 18, Germany, Achondroplasie