Position Papers

A position paper describes an organisation's recommendations concerning a political issue, legislation or a European directive. In the context of its advocacy work in favour of rare diseases, Eurordis regularly publishes position papers on rare disease and orphan drug topics.

Informations services for rare diseases April 08 Information to patients
Informations services for rare diseases February 08 Centres of Expertise and European Reference Networks for Rare Diseases
Informations services for rare diseases January 08 Research Priorities for Rare Diseases
Informations services for rare diseases December 05 Rare diseases: understanding this public health priority
Informations services for rare diseases November 08 Centres of Expertise & European Reference Networks for Rare Diseases
Informations services for rare diseases October 10 Why rare disease research?
Informations services for rare diseases October 11 Patients’ priorities and needs for rare disease research