EURORDIS Social Media

EURORDIS Social Media is a great way to stay connected and informed … and to add your voice to ongoing rare disease discussions.

facebook EURORDISfacebook.com/eurordis
‘Like’ and ‘Follow’ the EURORDIS Facebook page. View the EURORDIS Facebook timeline, get the latest news and information, and participate in the ongoing conversation on current rare disease issues and events.

twitter EURORDIStwitter.com/eurordis
Follow the latest EURORDIS news on Twitter (@eurordis). Re-tweet EURORDIS posts. Use the #raredisease hashtag when you tweet.
 

youtube EURORDISyoutube.com/channel/UCS501UpoBg4CpYsU9EqAwMQ
Watch the latest EURORDIS videos on a variety of rare disease topics. Share your favorites.
 

flickr EURORDISflickr.com/photos/eurordis
Follow EURORDIS in photos! Check out the EURORDIS flickr photostreams and albums.
 

Google+ EURORDISGoogle+
Follow EURORDIS on Google+. Stay up-to-date with what’s going on.
 

Page created: 12/06/2014
Page last updated: 06/11/2015
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. A RareConnect é uma iniciativa da EURORDIS RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases