O Encontro de Associados da EURORDIS



Save the date: EURORDIS Membership Meeting 2017 Budapest

The next EURORDIS Membership Meeting (EMM 2017) will take place in Budapest, Hungary at the Danubius Hotel Helia from 19 - 20 May 2017.

The working language of the meeting will be English, with simultaneous translation of the Plenary Session on Friday into Hungarian.

Read the draft programme here.


Register via the form below.

  • 1 person per patient organisation (EURORDIS members only): Free
  • Additional representative from patient member organisations: 125€ per person
  • Other patient organisations, researchers, healthcare professionals and academia: 150€
  • Healthcare industry representative:  500€


The registration fee covers access to the meetings, coffee breaks and lunch Friday 19 and Saturday 20, as well as the Welcome Dinner Friday evening.


Soapbox Session


6 patient representatives will have the opportunity to present Innovative strategies, approaches, services or projects that could potentially be useful to other patient groups in a soapbox session on Saturday 20 May. If you are interested in participating, please email anja.helm@eurordis.org. Each person will have 5 minutes to present (no slides will be allowed).


We encourage you to book your hotel rooms as soon as possible.

Danubius Hotel Helia
Kárpát utca 62-64., 1133 Budapest, Hungary,

Phone: +36-1-889-5800,

Hotel room rates:
Single room: 98,-EUR/ room /night
Double room: 98,-EUR/ room /night
Danube view: 10,-EUR/ room /night

  • The above prices are inclusive of buffet breakfast, WiFi internet access throughout the hotel, unlimited use of the Danubius Premier Fitness Club
  • Click here to book your room with the Eurordis EMM rate
  • The hotel has wheelchair-adapted rooms. Please contact emilie.zingg@eurordis.org to book one of these rooms.
  • For directions from the airport to the hotel including estimated costs and phone number for a taxi service adapted for wheelchair users and for more hotel options, please download our Practical Information document.

Satellite Meetings

This 2-day event, is preceded by the following satellite meetings on May 18:

EURORDIS Board of Directors elections

Friday 19 May,  will begin with the EURORDIS Annual General Assembly, during which five directors will be elected to the Board of Directors.

If you represent a member organisation of EURORDIS (full members only) and would like to apply for a seat on the board, please contact anja.helm@eurordis.org before 26th April 2017.


We look forward to seeing you in Budapest!


Todos los años, la Reunión de Miembros de EURORDIS proporciona a más de 200 pacientes, organizaciones de pacientes, diseñadores de políticas la oportunidad de crear redes y talleres de creación de capacidades para mejorar la vida de los que padecen una enfermedad rara.


Los talleres entorno a la reunión de miembros de EURORDIS están diseñados para que los pacientes desarrollen el conocimiento y la capacidad de avanzar en políticas y servicios para los pacientes de enfermedades raras en su país y comunidades locales. La  Reunión de miembros de EURORDIS es una gran oportunidad para que los socios establezcan redes, compartan las mejores prácticas y aumenten el conocimiento de los temas inherentes a las organizaciones miembros y el colectivo de las enfermedades raras en el país de cada socio.  


Mais informações

Os nosso membros

Previous Membership Meetings:


Page created: 13/01/2014
Page last updated: 10/03/2017
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. A RareConnect é uma iniciativa da EURORDIS RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases