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Publications
May 11 (All day)
EURORDIS Contribution to the European Commission Public Consultation on the Revision of the “Clinical Trial Directive”
December 09
Concept paper: Improving Access to Orphan Drugs (11th ERTC Workshop)
November 09 (All day)
EURORDIS Policy on Financial Support by Commercial Companies
May 09
POLKA: Patients’ Consensus on Preferred Policy Scenarii for Rare Diseases
February 09
La Voix de 12 000 Malades
February 09
The Voice of 12,000 Patients
November 08
Centres of Expertise & European Reference Networks for Rare Diseases
November 08
Les centres d’expertise et les réseaux de référence européens pour les maladies rares
June 07
Eurordis Charter for Clinical Trials in Rare Diseases
December 05
Rare diseases: understanding this public health priority
December 05
Maladies rares : comprendre cette priorité de santé publique
March 04
Rare Disease Info: Guidelines & Manual
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Rare disease blogs
A disappointing consultation on the UK plan for rare diseases
Wed, 07 Mar 2012 - I’ve just been reading through the consultation document for the UK plan on rare
...
Why Rare Disease Day is So Important
Mon, 27 Feb 2012 - When EURORDIS first created Rare Disease Day in 2008, my first reaction was a bit
...
Rare Disease Day: Building momentum towards international collaboration.
Mon, 27 Feb 2012 - As we celebrate the International Rare Disease Day 2012 we are turning rare diseases into
...
NORD Supports TREAT Act Introduced by Senator Hagan
Thu, 16 Feb 2012 - U.S. Senator Kay Hagan (NC) has introduced proposed legislation that NORD believes could
...
