2nd Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease Therapies

Would you like to be a part of a truly multi-stakeholder process aiming to establish sustainable and long-lasting solutions to improve patients’ access to rare disease therapies?


This Symposium on improving patient access to rare disease therapies will bring together patient advocates, payers, HTA bodies, academics, clinicians, policy makers, investors and industry representatives. It will enable participants to understand the interests and challenges of each stakeholder group, to discuss current and emerging initiatives and to continue to work together to improve patients’ access to rare disease therapies.

There are limited places available for this Symposium, please register via the form below.

See the preliminary programme and more information (venue, travel & accommodation, programme committee and official partners).

All patient representatives will have their fee waived for this event. Payer bodies, HTA agencies, national competent authorities, regulators or government workers should contact emilie.zingg@eurordis.org to register for this event.

Please note that the language of this event is English.

Register here:






The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases