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RareConnect

Discover RareConnect, a growing social network of rare disease communities. RareConnect helps rare disease patients learn about their disease, meet others and share their experiences.

• Alkaptonuria (AKU)
• Alternating Hemiplegia
• Atypical Hemolytic Uremic Syndrome
• Behçet's Syndrome
• CAPS
• CDG
• Cystinosis
• Epidermolysis Bullosa
• Familial Mediterranean Fever
• Glut1 DS
• Hereditary Spastic Paraplegia
• Waldenstrom macroglobulinemia
• Multiple Myeloma
• Von Hippel-Lindau

Rare disease blogs

• Live from Tbilisi, Georgia Wed, 02 Nov 2011 - Live from Tbilisi. I am at the 2nd South Caucasia Conference on Rare Diseases and Orphan...
• Report from Washington. The 1st US Conference on Rare Diseases and Orphan Products. Wed, 02 Nov 2011 - The 1st US Conference on Rare Diseases and Orphan Products, co-organised by NORD...
• Rare diseases are an example of the need for more Europe today Wed, 05 Oct 2011 - After the impact on Europe of the US financial crisis two years ago, the EU is now shaken...
• Do we need to rebrand rare diseases? Wed, 05 Oct 2011 - I came home late from London last night. We’d just had a brainstorm with a group of...