March 2012

24th Annual DIA EuroMeeting

26-28 March 2012
Copenhagen
diahome.org

13th International Conference on Neuronal Ceroid Lipofuscinosis and 1st Worldwide Meeting of Batten Disease Int'l Alliance

28-31 March 2012
London, England
ncl2012.org

4th BHD Symposium

28-30 March 2012
Cincinnati, USA
bhdsyndrome.org

April 2012

International Symposium on Hepatic Glycogen Storage Disease

4-6 April 2012
Lyon, France
gsd2012.univ-lyon1.fr

World Orphan Drugs Congress

11-13 April 2012
Washington D.C
terrapinn.com

Fourth International Meeting on Primary Central Hypoventilation Syndromes

13-14 April 2012
Warsaw, Poland
chsinternationalmeeting.eu

9th Annual Pain Management Conference

An insight into ongoing therapeutic challenges and new developments for effective treatment
18-19 April 2012
London, UK

elena.gorbunkova@vgpharmaceuticals.com

NET Information Day

21 April 2012
Amsterdam, Netherlands
net-kanker.nl

May 2012

EU High level Conference

"EU Health Programmes: results and future perspectives"
3 May 2012
Brussels, Belgium
ec.europa.eu

Scientific Symposium World Pulmonary Hypertension Day

5-6 May 2012
Madrid, Spain
diamundial.hipertensionpulmonar.es

Conference: Limb Lengthening for Achondroplasia

5-6 May 2012
Milan, Italy
aisac25.eu

HAE Awareness Day

16 May 2012
haeday.org

Sixth International Alkaline Phosphatases Symposium

16-19 May 2012
Huningue, France
hypophosphatasie.com

HAE Global Conference

"Advocacy and Access”
17–20 May 2012
Copenhagen, Denmark
haei.org

EMM 2012 Brussels

23 May 2012
Brussels, Belgium
rare-diseases.eu

6th European Conference on Rare Diseases & Orphan Products (ECRD)

23-25 May 2012
Brussels, Belgium
More information

Nordic conference on rare diseases

Reykjavik, Iceland
31. May-1 June 2012
greining.is

June 2012

5th International Conference on Ectodermal Dysplasia (ED2012)

1-3 June 2012
Erlangen, Germany
ed2012.org

European Conference on Aniridia

8-10 June 2012
Oslo, Norway
aniridiaconference.org (for doctors)
aniridiaconference.no (for patients)

1st EuroAsian Conference on Rare Diseases & Orphan Drugs

& 3rd Russian Conference "Lifeline"
21-23 June 2012
Moscow, Russian Federation
rareconf2012.org

6th NBIA Family Conference

21-24 June 2012
Hohenroda, Germany
hoffnungsbaum.de

2012 World Rett Syndrome Congress

22-26 June 2012
New Orlean, USA
worldcongress.rettsyndrome.org

10th International Primary Hyperoxaluria Workshop

22-23 June 2012
Bonn, Germany
hyperoxalurie.de

European Human Genetics Conference 2012

23-26 June 2012
Nurnberg, Gemany
eshg.org

World Scleroderma Day

29 June 2012

12th International Symposium on MPS and Related Diseases

28 June - 1 July 2012
Noordwijkerhout (near Amsterdam), Netherlands

mps2012.eu

European Working Group on Gaucher Disease Meeting

28-30 June 2012
Paris, France
wggd-paris.com

July 2012

World Federation of Hemophilia World Congress

8-12 July 2012
Paris, France
wfhcongress2012.org

International Retina congress

14-15 July 2012
Hamburg, Germany
retina-international-2012.de

8th International Prader-Willi Syndrome Conference

17-21 July 2013
Cambridge, UK
pwsa.co.uk

September 2012

International Congress on Tuberous Sclerosis Complex

6-9 September 2012
Naples, Italy
sclerosituberosa.it

First International Symposium on Ehlers-Danlos Syndrome

8-11 September 2012
Ghent, Belgium
eds2012.be

October 2012

15th Biennial Meeting of the European Society of Immunodeficiencies (ESID 2012)

3-6 Oct 2012
Florence, Italy
kenes.com

3rd TIF Pan-European Conference

25-26 October 2012
Limassol, Cyprus
thalassaemia.org.cy

November 2012

3rd Annual World Orphan Drug Congress, Europe

29th-30th November 2012
Geneva, Switzerland
terrapinn.com

EURORDIS member patient organisations are eligible for free guest attendance.

Contact the Congress Director to request your place matthew.turner@terrapinn.com

December 2012

10th Asia-Pacific Conference on Human Genetics

5-8 December 2012
Kuala Lumpur, Malaysia<
apchg2012.org

July 2013 

PWS Conference

17-21 July 2013
Cambridge UK
ipwso.org