EURORDIS Summer School

EURORDIS launched the Summer School in 2008 to empower patients' representatives in the areas of clinical trials and EU regulatory affairs. Training resources (i.e. online learning, video recordings and all slide presentations) are organized in complimentary boxes by subject.


ExPRESS 2017 Expert Patient and Researcher EURORDIS Summer School

A new format was developed for the Summer School in 2015 that combines training for both expert patients and researchers on medicines development.


EURORDIS Summer School Alumni

To date more than 300 participants from over 40 countries representing more than 75 diseases have received training


Pre-Summer School Training Module

Overview of the topics that are covered at the Summer School as well as exercises and quizzes to familiarise trainees with some of the key concepts and issues presented


Summer School Trainers

Each year the Summer School material is taught by experts in the field. Learn more about who they are


EURORDIS Summer School Glossary of Terms

A glossary of terms relating to ethics, methodology, pharmacology, regulation and statistics.


e-Learning Glossary

An interactive glossary of terms on medicines research & development

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases