Making Rare Diseases A Public Health Priority In All Member States
The Commission Communication and Council Recommendation on European Action in the Field of Rare Diseases have given momentum to the implementation of National Plans for Rare Diseases around Europe.
Currently France is the only country that has implemented a comprehensive plan. Netherlands has implemented a national strategy inclusive of all stakeholders and Italy has developed regional strategies. Bulgaria, Portugal and Spain, more recently, have adopted their own national plans. More are in the pipeline. Budget is a common issue to make the plan’s vision become reality.
Bulgaria
The Bulgarian Association for Promotion of Education and Science (BAPES) submitted to the Bulgarian Ministry of Health the first
France
2nd French National Plan unveiled on Rare Disease Day 2011: A message of hope for patients in France and all over Europe.
Greece
Things are moving for the rare disease community in Greece! At a moment when the European Commission is pushing for all Member States to have their own
Portugal
Two years after the Fourth European Conference on Rare Diseases in Lisbon, the Portuguese are ready to implement their own National Plan
The EUROPLAN Conferences
Building momentum for Rare Disease National Plans across Europe
The EUROPLAN Project
An initiative to support national strategies and plans for rare diseases in all EU Member States.
BURQOL-RD Project
Social Economic Burden and Health-Related Quality of Life in Patients with Rare Diseases in Europe
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