An increasing number of rare disease patients are seeking care in another Member State. A concerted European strategy is being developed to further facilitate the movement of patients and professionals, simplify procedures and increase the quality of and access to cross-border care.
It will also further progress in disseminating new medical technologies and ensuring safety of care for patients in all the EU Member States. This issue is especially relevant to rare disease patients living in an ‘enlarged’ Europe today.
Today, more than half of new national policies, laws and regulations stem from EU policies, directives and regulations. Since Eurordis represents rare disease patients from all...
Patient mobility across European borders is a reality for people living with rare diseases today.
Preimplantation Genetic Diagnosis (PGD) - a technique of high interest to rare disease patients - offers an interesting case of patient mobility.
In November 2010, the European Commission adopted a strategy that seeks to improve the situation of the estimated 80 million citizens living with a disability in Europe today.
Hope and concrete measures for rare disease patients seeking specialised services abroad