Membership of EURORDIS

EURORDIS works to build a strong pan-European community of patient organisations and people living with rare diseases.

 

Members’ news and announcements

Find out what's on and where! See which members are in the news!

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Become a member

As a member of EURORDIS, you will join an active pan-European rare disease community of dedicated people facing similar issues.

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EMM 2012 Brussels

The next EURORDIS Membership Meeting (EMM) takes place May 23 in Brussels in conjunction with ECRD 2012.

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National Rare Disease Alliances

National rare disease alliances serve to bring together all the many rare disease organisations in a particular country.

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The Council of National Alliances (CNA)

The CNA was established by Eurordis. This structure allows national representatives of rare diseases to work together on common European actions.

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European or International Networks - Member Groups

 A list of EURORDIS member organisations that are federations or networks on the European or international level.

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Council of European Rare Disease Federations

The Council of European Rare Disease Federations provides a platform for exchanging experience and information across...

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