Services to patients

EURORDIS promotes the implementation of services adapted to the situation and special needs of people living with rare diseases.

DIA EuroMeeting Fellowship programme

Don't miss a great opportunity to attend the DIA EuroMeeting 2012 in Copenhagen on March 26-28..

Therapeutic recreation programmes

EURORDIS has been promoted and networked Rare Disease Therapeutic Recreation Programmes (TRPs) since 2007. The Rapsodyonline site lists existing services around Europe...

Respite care services

EURORDIS has been promoting and networking Rare Disease Respite Services since 2007. The Rapsodyonline site lists and maps existing services around Europe.

Help line services

EURORDIS promotes, networks, trains and advocates on behalf of Rare Disease Help Line Services. The Rapsodyonline site lists and maps existing services around Europe.

Rare Disease Online Communities

Meet and learn in your own language!

eNews

Find out the latest news from the rare disease community!

Now available in Russian!

Social network

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RareConnect

A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups. List of Rare Disease Communities:

Rare disease blogs

A disappointing consultation on the UK plan for rare diseases Wed, 07 Mar 2012 - I’ve just been reading through the consultation document for the UK plan on rare...
Why Rare Disease Day is So Important Mon, 27 Feb 2012 - When EURORDIS first created Rare Disease Day in 2008, my first reaction was a bit...
Rare Disease Day: Building momentum towards international collaboration. Mon, 27 Feb 2012 - As we celebrate the International Rare Disease Day 2012 we are turning rare diseases into...
NORD Supports TREAT Act Introduced by Senator Hagan Thu, 16 Feb 2012 - U.S. Senator Kay Hagan (NC) has introduced proposed legislation that NORD believes could...

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