EURORDIS Access Campaign resources

 

A collection of resources and a glossary of terms to aid in understanding the issues around access to medicines and care for rare diseases.

 

EURORDIS Access Campaign glossary

Glossary of the technical terms used throughout the Access Campaign

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Official Reports

List of official reports that relate to the issue of access to medicines and care

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases