United Onlus

Phone number: 
+393711892290
National alliance: 
No
Federation: 
No
Country: 
Italy
Membership type: 
Full member

Sickle Cell And Thalassaemie Ireland

Phone number: 
+353870656807
National alliance: 
No
Federation: 
No
Country: 
Ireland
Membership type: 
Full member

Asociatia Persoanelor Cu Talasemie Majora

Phone number: 
+40766270026
National alliance: 
No
Federation: 
No
Country: 
Romania
Membership type: 
Full member

Oscar Nederland

Phone number: 
+31 30 6569634
National alliance: 
No
Federation: 
No
Country: 
Netherlands
Membership type: 
Full member

United Kingdom Thalassaemia Society

Email: 
Phone number: 
+442088820011
National alliance: 
No
Federation: 
No
Country: 
United Kingdom of Great Britain and Northern Ireland
Membership type: 
Full member

Thalassaemia International Federation

Phone number: 
+35722319129
National alliance: 
No
Federation: 
No
Country: 
Cyprus
Membership type: 
Full member
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases