The 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016 Edinburgh)

The 8th European Conference on Rare Diseases & Orphan Products (ECRD) takes place from 26 to 28 May 2016 at the Edinburgh International Conference Centre, Edinburgh, UK.

For more information about ECRD 2016 Edinburgh, visit the official conference website: or see the #ECRD2016 on twitter

Motto of the European Conference on Rare Diseases & Orphan Products (ECRD)

  • The ECRD is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders – patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.
  • It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.
  • It covers research, development of new treatments, health care, social care, information, public health and support at European, International, national and regional levels.
  • It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.


Official Conference Partners of the ECRD 2016 Edinburgh 

EURORDIS: Conference organiser
DIA: Conference co-organiser


Official Partners

EFPIA: The European Federation of Pharmaceutical Industries and Associations

EMA: European Medicines Agency

ESHG: European Society of Human Genetics

EUROPABIO: European Association for Bio Industries

EUCOPE: European Confederation of Pharmaceutical Entrepreneurs

FDA (OOPD): Food & Drug Administration, Office of Orphan Products Development

Genetic Alliance UK

HOPE: European Hospital and Healthcare Federation

NIHR RD Translational Research Collaboration


The Scottish Government


With the support of:


Page created: 24/09/2015
Page last updated: 19/03/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases