Current EURORDIS Rare Barometer surveys
Join the 10,000+ people living with a rare disease, family members and carers that share their views on the topics that matter the most to them both by responding to our surveys!
Rare Barometer, the EURORDIS survey programme, aims to make the voice of rare disease patients stronger. The objective is to transform your opinions and experiences about topics that directly affect you into figures and facts that can be shared with a wider public and policy makers.
Current surveys
There are no on going surveys at the moment.
Questions about our surveys? Please contact rare.barometer@eurordis.org.
Page created: 04/12/2019
Page last updated: 21/01/2021