Rare Barometer Voices: Patients' experience of treatments survey communication toolkit

Use these resources, available in 23 languages, to share the new global Rare Barometer survey with your networks.

Rare Barometer Voices - verti - with baseline - RGB.jpg

The more people who respond and share their experiences, the more powerful our voice will be!

Click on the links to download the materials.

1. Survey hyperlink

Share this link to the survey: http://bit.ly/eurordis-survey

2. Rare Barometer survey overview

Learn more about the survey, who can respond and how the results will be used (only available in English).
Experience of Treatment Survey Overview

3. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.

Bulgarian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

French

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Portuguese

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Croatian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

German

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Romanian

Email template

Facebook banner

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Suggested social media posts

Twitter banner

 

Czech

Email template

Facebook banner

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Suggested social media posts

Twitter banner

 

Greek

Email template

Facebook banner

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Suggested social media posts

Twitter banner

 

Russian

Email template

Facebook banner

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Suggested social media posts

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Danish

Email template

Facebook banner

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Suggested social media posts

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Hungarian

Email template

Facebook banner

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Suggested social media posts

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Slovak

Email template

Facebook banner

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Suggested social media posts

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Dutch

Email template

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Suggested social media posts

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Italian

Email template

Facebook banner

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Suggested social media posts

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Slovenian

Email template

Facebook banner

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Suggested social media posts

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English

Email template

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Suggested social media posts

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Latvian

Email template

Facebook banner

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Suggested social media posts

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Spanish

Email template

Facebook banner

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Suggested social media posts

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Estonian

Email template

Facebook banner

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Suggested social media posts

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Lithuanian

Email template

Facebook banner

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Suggested social media posts

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Swedish

Email template

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Suggested social media posts

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Finnish

Email template

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Suggested social media posts

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Polish

Email template

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Suggested social media posts

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4. Rare Barometer Voices logos

Use the Rare Barometer logos alongside articles promoting the survey on your website.

Rare Barometer Voices Logo (white)

Rare Barometer Voices Logo (purple)

Page created: 26/07/2016
Page last updated: 25/03/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases