A search engine on rare diseases customised for you

Searching the web can result in a large amount of often irrelevant or unqualified information. Use this custom search engine to browse our selection of websites. This search will provide results from the web pages of patient organsations who are members of EURORDIS as well as reference websites such as orpha.net and NIH

For more precise searching you may wish to employ the following methods:

  • Combine two or more search terms
  • Enclose your search term in "quotes" to search for an exact term
  • Use the minus (-) operator to exclude a term from a search

Page created: 17/05/2013
Page last updated: 29/10/2013
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases