EMM Amsterdam 2011 - Conferences and Workshops
"The EU tender on Newborn Screening for rare disordersin Europe"
"Presentation of the concept, definitions and terminology"
"EURORDIS Policy recommendations based on EURORDIS Declaration, Fact Sheets & Position Papers"
"Feedback from the 15 National Conferences on Centres of Expertise"
Presentation of the concept, definitions and terminology"
"Outcome of the RD Task Force and EPPOSI Workshop"
"Presentation of the Epi-Rare project"
"Feedback from the 15 National Conferences on Registries"
"EURORDIS Research Policy recommendation"
"Presentation of the RD Platform fact finding study on the trends and determinants of rare disease research"
"Feedback from the 15 National Conferences on Research policy"
"Feedback from the 15 National Conferences on social aspects"
"Presentation of Social Challenges of RD patients in the Joint Action on Rare Diseases"
"The Norwegian Model"
"Sharing expertise: transfer of experience from patient organisations to doctors and between patient organisations"
"BURQOL-RD"
"Feedback from the 15 National Conferences"
"Training package on RD for medical students"
"Case study: Italian Training for MDs,"
"The International Federation for Spina Bifida and Hydrocephalus’ primary prevention study"
"Folic acid prevents neural tubes defect"
"EUROCAT Study on Prevention of Congenital Anomalies"
"Prevention in the Spanish National Plan for Rare Diseases"
Page created: 24/05/2011
Page last updated: 24/10/2013