- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
The 9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)
The 9th edition of the European Conference on Rare Diseases & Orphan Products (ECRD) took place 10 – 12 May in Vienna, Austria.
Organised by EURORDIS and co-organised by Orphanet and the DIA, ECRD 2018 Vienna was the largest multi-stakeholder rare disease gathering in Europe in 2018.
ECRD 2018 Vienna provided a unique opportunity to network with all stakeholders shaping the rare disease environment: patient representatives, policy makers, researchers, industry, regulators, EU Member State representatives, academia, health care professionals and payers.
The overarching theme for the conference was Rare Diseases 360° – collaborative strategies to leave no one behind and sessions focused on topics covered by six themes:
- Structuring the research & diagnosis landscape
- Breakthrough medicines on the horizon: regulators, Health Technology Assessment (HTA) experts and patients working together
- The digital patient
- Quality of life: making what matters, matter
- Economical perspectives in rare diseases
- Global rare equity: Are we there yet?
ECRD 2018 Vienna was an opportunity to discuss and reach solutions on how we can look to the future to improve the lives of the estimated 30 million people living with a rare disease in Europe and 300 million worldwide.
To find out more visit the ECRD 2018 Vienna website.
Related eNews:
Find out the latest news from the rare disease community! We comply with the HONcode standard for health trustworthy information
We are grateful for the financial support of the EURORDIS website by:
This website received funding under an operating grant from the European Union’s Health Programme (2014-2020)
The voice of rare disease patients in Europe
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiative
Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative