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EURORDIS Photo Contest 2013: three winners selected from hundreds of entries
The EURORDIS Photo Contest 2013 received over 300 entries from 47 different countries and representing over 120 different rare diseases.
The Contest received hundreds of beautiful images – thank you to all the participants who sent in a photo … and to everybody who took the time to vote for their favourites!
The first prize goes to Katerina from Greece,
who lives with Friedreich ataxia. Katerina is a special needs teacher who lives a very active life. The caption to her photo sums up her approach to living with a rare disease.
Don’t let disability rule your life.
The second-place winning photo depicts Lily and Tristan, twins living in France.
Their photo caption refers to the fact that they are the only known cases of mitochondrial cardiomyopathy with a mutation on the MRPL3 gene.
Unique in the world but not for celebrity.
The third-place winning photo is of Margaretka,
a little Slovakian girl living with dystrophic epidermolysis bullosa.
Shaggy but lucky: Butterfly Princess Margaretka Joy is sometimes stronger than the pain. Seven-year-old Meggie has skin as delicate as butterfly wings.
View all the photos submitted to the EURORDIS Photo Contest 2013!
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More information
Louise Taylor, Communications and Development Writer, EURORDIS
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative