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EURORDIS Photo Contest 2013: three winners selected from hundreds of entries
The EURORDIS Photo Contest 2013 received over 300 entries from 47 different countries and representing over 120 different rare diseases.
The Contest received hundreds of beautiful images – thank you to all the participants who sent in a photo … and to everybody who took the time to vote for their favourites!
The first prize goes to Katerina from Greece,
who lives with Friedreich ataxia. Katerina is a special needs teacher who lives a very active life. The caption to her photo sums up her approach to living with a rare disease.
Don’t let disability rule your life.
The second-place winning photo depicts Lily and Tristan, twins living in France.
Their photo caption refers to the fact that they are the only known cases of mitochondrial cardiomyopathy with a mutation on the MRPL3 gene.
Unique in the world but not for celebrity.
The third-place winning photo is of Margaretka,
a little Slovakian girl living with dystrophic epidermolysis bullosa.
Shaggy but lucky: Butterfly Princess Margaretka Joy is sometimes stronger than the pain. Seven-year-old Meggie has skin as delicate as butterfly wings.
View all the photos submitted to the EURORDIS Photo Contest 2013!
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More information
Louise Taylor, Communications and Development Writer, EURORDIS
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- Alkaptonuria (AKU)
- Allan Herndon Dudley Syndrome MCT8
- Alström Syndrome
- Alternating Hemiplegia
- Atypical Hemolytic Uremic Syndrome
- Amyloidosis
- Aortic Dissection
- Apert Syndrome
- Arachnoiditis (ARC)
- Autoimmune lymphoproliferative syndrome (ALPS)
- Behcet's Syndrome
- Brown-Vialetto-Van Laere syndrome
- CAPS
- Castleman Disease
- CDG
- Choroideremia
- Chromosome 18 abnormalities
- Chronic Recurrent Multifocal Osteomyelitis (CRMO)
- CMTC
- Coats disease
- Cobb Syndrome
- Cone-rod dystrophies
- Cryoglobulinemia
- Cystinosis
- Dravet Syndrome
- DysNet, Dysmelia - Limb Differences
- Ectodermal Dysplasia
- EEC syndrome
- Ehlers-Danlos Syndrome
- Epidermolysis Bullosa
- Erdheim-Chester Disease
- Evans Syndrome
- Familial Mediterranean Fever
- Fetal AntiConvulsant Syndromes
- Fibromuscular dysplasia
- FOXP1
- Glut1 DS
- Hemiconvulsion-hemiplegia-epilepsy syndrome
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Hereditary Sensory and Autonomic Neuropathies (HSAN)
- Hereditary Spastic Paraplegia
- Idiopathic Pulmonary Fibrosis
- Kallmann Syndrome
- Kleefstra syndrome (Ks)
- Leber hereditary optic neuropathy (LHON)
- Leigh Syndrome
- Lipodystrophy
- Lipoprotein Lipase Deficiency
- Liposarcoma
- Lowe Syndrome
- Lymphangiomatosis and Gorham's Disease (LGD)
- Lysosomal acid lipase deficiency (LALD)
- Malignant Infantile Osteopetrosis (MIOP)
- Mastocytosis
- Melkersson-Rosenthal Syndrome (MRS)
- Multiple Myeloma
- Multiple system atrophy
- Moebius Syndrome
- Moyamoya disease
- Multiple Endocrine Neoplasia (MEN)
- Myasthenia Gravis
- Myhre syndrome
- Narcolepsy
- NBIA
- Neuroacanthocytosis
- Neurofibromatosis type 1
- Neurofibromatosis type 2 and Schwannomatosis
- Neuromyelitis Optica (NMO)
- Niemann-Pick disease type C
- Paraneoplastic Neurological Syndromes
- Pemphigus and Pemphigoid
- Pityriasis Rubra Pilaris (PRP)
- Pitt Hopkins Syndrome
- Pontine Tegmental Cap Dysplasia
- Porphyria
- Primary Orthostatic Tremor (POT)
- Propionic Acidemia
- Pseudomyxoma Peritonei
- Pulmonary Hypertension
- Rett Syndrome
- Ring chromosome 20 syndrome
- Sanfilippo Syndrome (MPS III)
- Spontaneous Coronary Artery Dissection
- Stargardt Disease
- Stickler syndrome
- Stiff Person Syndrome
- TRAPS
- Trichorhinophalangeal syndrome
- Trimethylaminuria
- Undiagnosed diseases
- Urea Cycle Disorders
- Vasculitis
- Von Hippel-Lindau
- Waldenstrom macroglobulinemia
- Whim syndrome
- Williams Syndrome
- Acanthamoeba keratitis (AK)
- Adrenal Insufficiency
- Alkaptonuria (AKU)
- Allan Herndon Dudley Syndrome MCT8
- Alström Syndrome
- Alternating Hemiplegia
- Atypical Hemolytic Uremic Syndrome
- Amyloidosis
- Aortic Dissection
- Apert Syndrome
- Arachnoiditis (ARC)
- Autoimmune lymphoproliferative syndrome (ALPS)
- Behcet's Syndrome
- Brown-Vialetto-Van Laere syndrome
- CAPS
- Castleman Disease
- CDG
- Choroideremia
- Chromosome 18 abnormalities
- Chronic Recurrent Multifocal Osteomyelitis (CRMO)
- CMTC
- Coats disease
- Cobb Syndrome
- Cone-rod dystrophies
- Cryoglobulinemia
- Cystinosis
- Dravet Syndrome
- DysNet, Dysmelia - Limb Differences
- Ectodermal Dysplasia
- EEC syndrome
- Ehlers-Danlos Syndrome
- Epidermolysis Bullosa
- Erdheim-Chester Disease
- Evans Syndrome
- Familial Mediterranean Fever
- Fetal AntiConvulsant Syndromes
- Fibromuscular dysplasia
- FOXP1
- Glut1 DS
- Hemiconvulsion-hemiplegia-epilepsy syndrome
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Hereditary Sensory and Autonomic Neuropathies (HSAN)
- Hereditary Spastic Paraplegia
- Idiopathic Pulmonary Fibrosis
- Kallmann Syndrome
- Kleefstra syndrome (Ks)
- Leigh Syndrome
- Leber hereditary optic neuropathy (LHON)
- Lipodystrophy
- Lipoprotein Lipase Deficiency
- Liposarcoma
- Lowe Syndrome
- Lymphangiomatosis and Gorham's Disease (LGD)
- Lysosomal acid lipase deficiency (LALD)
- Malignant Infantile Osteopetrosis (MIOP)
- Mastocytosis
- Melkersson-Rosenthal Syndrome (MRS)
- Multiple Myeloma
- Multiple system atrophy
- Moebius Syndrome
- Moyamoya disease
- Multiple Endocrine Neoplasia (MEN)
- Myasthenia Gravis
- Myhre syndrome
- Narcolepsy
- NBIA
- Neuroacanthocytosis
- Neurofibromatosis type 1
- Neurofibromatosis type 2 and Schwannomatosis
- Neuromyelitis Optica (NMO)
- Niemann-Pick disease type C
- Paraneoplastic Neurological Syndromes
- Pemphigus and Pemphigoid
- Pityriasis Rubra Pilaris (PRP)
- Pitt Hopkins Syndrome
- Pontine Tegmental Cap Dysplasia
- Porphyria
- Primary Orthostatic Tremor (POT)
- Propionic Acidemia
- Pseudomyxoma Peritonei
- Pulmonary Hypertension
- Rett Syndrome
- Ring chromosome 20 syndrome
- Sanfilippo Syndrome (MPS III)
- Spontaneous Coronary Artery Dissection
- Stargardt Disease
- Stickler syndrome
- Stiff Person Syndrome
- TRAPS
- Trichorhinophalangeal syndrome
- Trimethylaminuria
- Undiagnosed diseases
- Urea Cycle Disorders
- Vasculitis
- Von Hippel-Lindau
- Waldenstrom macroglobulinemia
- Whim syndrome
- Williams Syndrome
