Fundraising for EURORDIS

Every cent from every donation, cake sale, marathon or dinner party will help to reduce the feeling of isolation experienced by many rare disease patients as well as advocate for rights to treatment and care, whoever the person and wherever they live.

Thank you for making a difference to the rare disease community!

Before you get started:

Get your fundraising toolkit

Your fundraising toolkit includes helpful ideas and tips for planning your fundraiser. Download your fundraising toolkit today!

Want to organise a fundraising event at work?

Download your Fundraising at Work Pack!

Contact us

Tell us about your project and learn more about how we can support your fundraiser! Email us at

Please note: Your donation is tax deductible in all EU member states and in the US. More detail on your tax deduction. 

Page created: 27/01/2016
Page last updated: 08/03/2016
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases