How your support helps

Every donation helps to improve the lives of people living with a rare disease.

Your contribution enables EURORDIS to raise awareness about rare diseases, connect people living with a rare disease and advocate for access to diagnostics, treatments and care for all rare disease patients.

Examples of where your money goes:

Rare Disease Day


The ExPRESS EURORDIS Summer School


Contact us:

Page created: 27/01/2016
Page last updated: 08/03/2016
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases