EURORDIS Membership Meeting

EURORDIS Membership Meeting 2021

The EURORDIS Membership Meeting (EMM 2021) will take place online 12 to 14 May, followed by the online General Assembly on 10 June 2021.

EURORDIS represents 962 rare disease patient organisations in 73 countries. EURORDIS Membership Meeting is an excellent opportunity for patient organisations to meet other patient advocates, learn from the best in the rare disease community, and get exposed to the latest developments in rare disease advocacy.

Draft agenda

Registration


This year, the EURORDIS General Assembly takes place 10 June.

This is the moment to get a full view of EURORDIS' activities, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.

Membership Meeting 2014

Draft agenda (available soon)

Previous Membership Meetings/ General Assemblies:

 

 

 

Page created: 23/07/2013
Page last updated: 09/04/2021
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases