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EURORDIS Membership Meeting
EURORDIS Membership Meeting 2021
The EURORDIS Membership Meeting (EMM 2021) will take place online 12 to 14 May, followed by the online General Assembly on 10 June 2021.
EURORDIS represents 962 rare disease patient organisations in 73 countries. EURORDIS Membership Meeting is an excellent opportunity for patient organisations to meet other patient advocates, learn from the best in the rare disease community, and get exposed to the latest developments in rare disease advocacy.
This year, the EURORDIS General Assembly takes place 10 June.
This is the moment to get a full view of EURORDIS' activities, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.
Draft agenda (available soon)
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The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative