EURORDIS Membership Meeting

Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations.

These events are excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get a full view of EURORDIS' activities, to exchange with staff, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.

The General Assembly is coupled every two years with a 2 day capacity-building workshop, specifically targeted to our members: the EURORDIS Membership Meeting (EMM).

Membership Meeting 2014

In every other year (even number years), it is held in conjunction with the European Conference on Rare Diseases and Orphan Products (ECRD), the largest multi-stakeholder conference for rare diseases in Europe. 

EURORDIS members are invited to register for ECRD to learn more about recent updates in the rare disease community and meet patients from around the world. EURORDIS members benefit from a special registration fee to the ECRD. 

EURORDIS Board elections take place during the EURORDIS General Assembly to elect four new directors to the EURORDIS Board of Directors. If you would like to apply for a seat on the Board, please contact anja.helm@eurordis.org for more information. Please note that only representatives from full members can be candidates.

Upcoming events for EURORDIS Members:

2019

The next full EURORDIS Membership Meeting (EMM) will take place on 16 - 18 May 2019 in Bucharest. Details on how to register will be made available on this page shortly. 40 fellowships will be awarded to selected patient advocates to attend the EMM. 

 

More information 

 

Previous Membership Meetings/ General Assemblies:

 

 

 

Page created: 23/07/2013
Page last updated: 13/09/2018
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases