EURORDIS Membership Meeting

EURORDIS Annual General Assembly 2020

The EURORDIS Annual General Assembly 2020 will take place online on 13 May from 10am - 1.15pm, back-to-back with the EURORDIS Conference on Rare Diseases & Orphan Products 2020 (14-15 May).

General Assembly 2020 documents

To register to attend the General Assembly and the ECRD, please select the checkbox when you register for the ECRD as a EURORDIS member.

If you wish to attend the General Assembly without attending the ECRD, please use this link to register for the General Assembly.

Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations.

These events are excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get a full view of EURORDIS' activities, to exchange with staff, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.

The General Assembly is coupled every two years with a 2 day capacity-building workshop, specifically targeted to our members: the EURORDIS Membership Meeting (EMM).

Membership Meeting 2014

In every other year (even number years), it is held in conjunction with the European Conference on Rare Diseases and Orphan Products (ECRD), the largest multi-stakeholder conference for rare diseases in Europe. 

EURORDIS members are invited to attend the EMM to learn more about recent updates in the rare disease community (find out more below). EURORDIS members benefit from one free pass for the meeting. 

Previous Membership Meetings/ General Assemblies:




Page created: 23/07/2013
Page last updated: 29/04/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases