News on European Reference Networks (ERNs)


The European Commission has produced a range of videos to explain what European Reference Networks really mean for patients. Watch the stories of Elisa, Jasper, Paula and Daniel!


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Get involved in European Reference Networks 

September 2016: EURORDIS is laying the groundwork for the participation of patients in the activities and governance of ERNs


Newly elected ePAG patient representatives 

May 2016: The newly elected ePAG (European Patient Advocacy Group) patient representatives have now been announced.


Getting ready for European Reference Networks 

December 2015: The European Commission will launch a call for applications from networks that want to become an ERN in early 2016.


EURORDIS Membership Meeting 2015 Focuses on European ReferenceNetworks 

June 2015: The 2015 EURORDIS Membership Meeting was abuzz with networking between over 250 participants who travelled from all over the world to Madrid.


eNews: EURORDIS & PartnersWin Call for Tender to Develop ERN Manual & Toolbox 

February 2015: The Partnership for Assessment of Clinical Excellence in European Reference Network (PACE-ERN) Consortium, with EURORDIS as its lead, won anEU Commission call for tenderto develop a ERN manual and toolbox.


What is a European Reference Network? 

January 2015: ERNs createa clear governance structure for knowledge sharingand care coordination across the EU. They are networks of centres of expertise, healthcare providers and laboratories that are organised across borders.


EURORDIS Press releases

First 23 European Reference Networks for Rare Diseases: a milestone for 30 million patients in Europe 

December 2016


Launch of European Reference Networks: connecting experts to improve healthcare for 30 million rare disease patients across Europe 

February 2017


European Commission's DG Sante wins EU Ombudsman for EU Collaboration on rare diseases 

March 2017 

Page created: 12/11/2015
Page last updated: 30/06/2017
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