Past and current projects

EURORDIS has a long history of participation in key EU-level projects relevant to rare diseases and orphan medicines

Current projects

EURORDIS participates in the European Clinical Research Infrastructures Network (ECRIN),  a sustainable, infrastructure supporting multinational clinical research projects in Europe.


The five-year European Patients' Academy on Therapeutic Innovation (EUPATI) project (2012-2017) led by the European Patients' Forum (EFP) and funded by the Innovative Medicines Initiative (IMI), is educating patients on therapeutic innovation. EURORDIS is actively contributing to the pedagogic content, face-to-face training and e-learning.


Past involvement


EURORDIS led a Work Package focusing on developing and managing supranational biobanks in the Network of Excellence for rare inherited neuromuscular diseases, Treat-NMD.

EURORDIS co-created and ensured the coordination of the European Network of DNA, Cell and Tissue Banks for Rare Diseases (EuroBioBank) and continues to be involved in network activities.

The European Network for the Advancement of Clinical Gene Transfer and Therapy (CLINIGENE) was developed to integrate multidisciplinary research and development in gene therapy. EURORDIS played an advisory role, exchanging information on the potentials of gene therapy.

Page created: 07/08/2013
Page last updated: 30/09/2016
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