Rare Diseases awareness dates

Does your association have an awareness date to communicate? Please contact us.

February 2017

International Angelmans Day

15 February, more information

International Childhood Cancer Awareness Day (ICCD)

15 February, more information

Rare Disease Day

28 February, more information

March 2017

Lymphedema Awareness Day

6 March, more information 

April 2017

World Health Day

7 April, more information

World Haemophilia Day

17 April, more information 

May 2017

Ichthyosis Awareness Month

May 2017, more information

Syringomyelia Awareness Month

May 2017, more information 

Von Hippel-Lindau (VHL) Awareness Month

May 2017, vhl.org

World Pulmonary Hypertension Day 

5 May, more information

Wishbone Day: international community awareness effort for Osteogenesis Imperfecta

6 May, www.wishboneday.com

Lymphangiomatosis and Gorham's Disease Worldwide Awareness Day

26 May




Type II Collagenopathies Awareness Day

27 May, more information 


June 2017

Heart Rhythm Week

5-11 June, more information

Chromosome Disorder Awareness Week

11-17 June, more information

International Albinism Awareness Day

13 June, more information 

Journée Mondiale de la Drépanocytose (World Sickle Cell Day)

19 June, more information

International Aniridia Day

21 June, more information

Myeloma Awareness Week

21-28 June, more information

Dravet Syndrome Awareness Day

23 June, more information

World Scleroderma Day

29 June, more information

July 2017

Pseudohypoparathyroidism Awareness Day

5 July, more information

August 2017

World PVNH disorder Awareness day

7 August, more information

September 2017

World Duchenne Awareness Day

7 September, more information

World Retina Day

9 September, more information

World Lymphoma Awareness Day

15 September, more information

Usher Awareness Day - Own the Equinox

16 September, more information

IPF World Week

16-24 September 2017, more information 

Global Aortic Dissection Awareness Day

19 September, more information

World CML Day

22 September, more information

International Ataxia Awareness Day

25 September, more information

October 2017

International Gaucher Day

1 October, more information

International Trigeminal Neuralgia Awareness Day

7 October, more information

World Spina Bifida Day

25 October, more information

EB Awareness Week

25-31 October, more information

November 2017

NET Cancer Day

10 November, more information

AF Aware Week

20-26 November, more information

Cystic Fibrosis Awareness week

20-26 November

December 2017

Patient Solidarity Day

2 December, more information

International Day of Persons with Disabilities

3 December, more information

Page created: 08/11/2013
Page last updated: 19/09/2017
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases