Searching databases for rare disease information

Learn how to use some of the many online databases which may help you identify relevant information

There are many different types of online databases which may help you identify relevant information on rare diseases, orphan medicines, clinical trials, or scientific articles. In this video tutorial EURORDIS volunteer David Oziel shows you which of these are most valuable and will talk you through how to use them.

Part 1: Searching databases for rare disease information

Download revised presentation used in this session

Part 2: Searching databases for orphan drug information

Page created: 17/05/2013
Page last updated: 28/03/2018
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases