Social media kit - #UHC4RareDiseases

Campaign hasthag: 


  • Add this hashtag to all your posts.
  • Using #UHC4RareDiseases will help us know how many people and organisations have taken part in the campaign on social media.
  • Tag EURORDIS (@eurordis) and RDI (@rarediseasesint)

Other recommended hashtag: 

1. #RareDiseaseDay
2. #HealthForAll
3. #UHC2030

Social Media Images: 





Social Media posts: 

Here are some post suggestions. Change the words and translate posts so they have the most impact for your community.

Post 1:

Universal Health Coverage is only truly universal if it also addresses the needs of people living with a rare disease. Advocate for #UHC4RareDiseases 

Use the toolkit to spread the word! #HealthForAll #UHC2030
Post 2:

Universal Health Coverage ensures all people can access quality health services without financial hardship.

People living with a #RareDisease have specific medical & social needs. They must be fully included in #UHC programmes.

Leave no one behind. Demand #UHC4RareDiseases !

Post 3:

Over 300 million people around the world live with a #RareDisease. UHC is for all. UHC is for the 300 million. #UHC4RareDiseases #HealthforAll

Advocate for rare diseases!

Post 4:

#RareDiseaseDay calls for equity. #UHC must promote the health and social rights of people living with a rare disease to enable everyone to participate in society.

Demand #UHC4RareDiseases! Use the toolkit to spread the word!

Post 5 (for Facebook): 

Universal Health Coverage ensures all people, everywhere, can access the quality essential health services they need without being exposed to financial hardship.

With over 300 million people worldwide living with a rare disease, addressing the needs of the rare disease community is an important step towards UHC for every country.

#UHC4RareDiseases #HealthForAll

LinkedIn Post: 

EURORDIS and Rare Diseases International (RDI) are launching the UHC for Rare Diseases Campaign (#UHC4RareDiseases). The Campaign provides a toolkit with essential tools to enable rare disease organisations to advocate for Universal Health Coverage (UHC) programmes inclusive of rare diseases.
Find the #UHC4RareDiseases toolkit:

  •  Send the template letter advocating for UHC and rare disease plans  to your government representative
  • Share the factsheet with policy recommendations to help implement UHC policies that address rare diseases
  • Use social media posts and images to spread the word online

The campaign aims to raise awareness amongst policy makers and the public of the fact that UHC cannot be truly universal unless it addresses the needs of people living with a rare disease.

Over 300 million around the world live with a rare disease. UHC is for all. UHC if for the 300 million. #UHC4RareDisease #HealthforAll


Page created: 07/10/2020
Page last updated: 07/10/2020
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases