The website of the National Institutes of Health in the USA
The NIH database of clinical trials provides more information on Compassionate Use Programmes
The NIH database of clinical trials database can be searched at: http://www.clinicaltrials.gov
This website is very similar to the EudraCT register; it contains information on clinical trials, studies, and Compassionate Use Programmes worldwide, including European sites.
In the USA, the equivalent term for Compassionate Use Programmes is “Expanded access studies”. You can choose this option in study type. Unlike the EU register, you cannot restrict the search to rare diseases.

Searching for compassionate use programmes in the NIH database
You can also type the name of a specific disease and see if and where compassionate use programmes are listed.
Page created: 30/10/2013
Page last updated: 07/11/2014